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SNIPPETS newsletter

Latest Edition - December 2011

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Understand genetic tests for specific cancers: new information and decision aids

The Centre for Genetics Education has partnered with the Cancer Council NSW to produce two new information and decision aids for individuals and families considering genetic testing for particular hereditary cancers - breast and ovarian cancer, and Lynch syndrome.

These excellent resources offer detailed information on the specific faulty genes that cause particular hereditary cancers and how families are affected. It also includes information on genetic tests that are available, interpretation of the results, and possible impacts for those who do and those who don't have genetic testing. There is also some guidance and blank workspaces at the back of the booklets for individuals to make notes.

Download your copy now.

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New pregnancy resources

Two new resources about special tests offered during pregnancy are now available. Screening tests for your baby in early pregnancy and Prenatal Testing: Special tests for your baby during pregnancy have been updated and written to offer you the latest information and help guide you through the different tests you might consider having during a pregnancy. These resources along with several other pregnancy resources are available for download from the publications section.
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Huntington disease and genetic testing

Joining the Centre's comprehensive suite of genetic resources,  Huntington disease and genetic testing, discusses in easy-to-understand language issues regarding genetic testing for Huntington disease, including prenatal testing and preimplantation genetic diagnosis (PGD). A PDF copy of the booklet is available for download or hard copies can be ordered free of charge for NSW residents.

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Genetic health information for everyone

The Centre for Genetics Education has published a new brochure, Genetic health information for everyone, about the importance of understanding our genes.
It also contains information about how the Centre can assist individuals, families, schools and the wider community. You can download a copy or contact us for more information.
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Centre for Genetics Education to continue having a voice on the evolution of genetics in Australia

Associate Professor Kristine Barlow-Stewart, Director of the Centre for Genetics Education, has successfully been reappointed as a member of the Human Genetics Advisory Committee (HGAC) of the National Health and Medical Research Council.


The HGAC has a continuing role in providing expert advice to government on current and emerging issues in human genetics and related technologies, particularly the expected impacts on human health and healthcare.


In NHMRC's current triennium the Committee will play an important part in advising on the ethical, legal and social implications arising from developments in human genetics and in leading community debate on these topics.


Rapid developments in human genetics and related technologies are likely to present substantial health benefits to the community. The Committee will offer advice on how these new technologies might best help all Australians.


The HGAC will be chaired by Professor Ron Trent and includes 11 members Australia-wide. The term will run until 30 June 2012.

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New Resources Now Available on our Website

  • What if I have a family history of cancer?
  • Risk Management Options for Women at Increased Risk of Developing Ovarian Cancer - Information Booklet & Decision Aid
  • Understanding genetic tests for Lynch syndrome - Information and decision aid
  • Understanding genetic tests for breast and ovarian cancer that runs in the family - Information and decision aid
  • Huntington disease and genetic testing
Last updated: Dec 15, 2011