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Last updated: Apr 25, 2018

Participants’ samples, data security and protection

The rights of participants must be considered throughout the process of collecting, preparing, sequencing and analysing samples. Participants have a right to confidentiality and privacy and appropriate systems must be in place to protect these rights.

For more information see – Making yourself data capable or the National Statement on Ethical Conduct in Human Research [1].

Have you thought about?

  • How will the participants’ biological samples, metadata and genomic data be stored, managed and kept secure?
  • Will the samples be stored, distributed or destroyed after the study?

[1] The National Statement on Ethical Conduct in Human Research. https://www.nhmrc.gov.au/book/chapter-3-5-human-genetics