Information

The Centre for Genetics Education is a state wide service dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them. The Centre's activities include the production of resources with an aim to bring genetics information to the widest audience possible.

Why Is Genetics Important?

Genetics is the study of genes. Genes are small pieces of information that can determine many characteristics such as height, eye colour, and health. Our genetic information is passed down (inherited) from our parents through genes.

Around half of all Australians will be affected in some way by a genetic health issue in their lifetime. Many health problems (such as diabetes and heart disease) are partly or completely caused by our genes. This is why some health conditions run in families.

Understanding how our genes work may help us to manage these health issues and alleviate our concerns.

Have you ever ordered or recieved a Genetics Information Sheets from the Centre for Genetics Education?

We would like to invite you to participate in a short survey to help the Centre for Genetics Education (CGE) evaluate the Genetic Information Sheet (GIS) that you received from the Association of Genetics Support of Australasia (AGSA) or the Centre for Genetics Education (CGE). The survey should take about 5 – 10 minutes to complete.

The information sheet you received was written by CGE to provide information on causes, symptoms, inheritance, prevalence, treatments, testing and support groups for individuals and families with a rare genetic condition.

This survey is designed to explore the attitudes towards and the use of the information sheets for individuals and families with a rare genetic condition. The results of the survey are intended to inform the future direction and development of the information sheets and ensure that individuals and families are receiving an information sheet that suits their needs.

The survey can be completed online between July 18 and May 2 and does not require you to provide any personal information. The survey can be found at;

http://www.surveymonkey.com/s/P582BVT

Results of the evaluation will available on request and presented at the Human Genetics of Australasia conference July 22-25. If you have any questions, comments or concerns feel free to contact Associate Genetic Counsellor and Information Officer, Simon Troth on (02) 9462 9596 or stroth@nsccahs.health.nsw.gov.au.

We thank you for taking this time to assist us and look forward to providing this resource to you in the future.

Information and resources can be found in

Personal tools

Sections

Information